Tuesday, December 22, 2015

What does the Âû in or after my name mean? Why is it there? Please read on.

Dear Facebook, 

What does the Âû in or after my name mean? Why is it there? Please read on.

1. I am Autistic.
2. I embrace my Autism as a very significant part of my identity.
3. I embrace those who would sacrifice to protect all Autistic life.
4. I embrace the belief that Autism does not need any "curing".
5. I embrace the self-advocacy goal of "Everything about us, with us".
6. I embrace the definition of Autism as a neuro-social difference.
7. I embrace measures directed at protecting Autistics from attack.
8. I embrace a person-centred approach to all Autism issues.
9. I embrace rigorous scientific approaches to co-occurring conditions.
10. I embrace Autistics leading their own welfare organizations.

And I am not alone. Banning or blocking someone based on this naming convention that acknowledges Autistic Pride and Solidarity is IN FACT discriminiation and a violation of the Americans With Disabilities Act. So please, when some neurotypical person who professes to be an expert on our lives, and then tries to silence us by using you as an unknowing bully pulpit, just ignore them. it is in fact a form of hate speech.

Furthermore, if you do a web search you will find my other web presences with the same Âû symbol after my name on G+ on my Blogs, all over the place, so it's not like I'd doing this here and here alone.

For more information please see:

https://m.facebook.com/AutisticUnion/?tsid=0.9605094885919243&source=typeahead

Sunday, November 1, 2015

Autistics Speaking day!


And yes, of course I'm participating. How could I not?


Even when I can only speak one kepress at a time, I can speak for myself thank you.

Wednesday, October 21, 2015

#LetterToShameZombies is like the best hash tag ever!

Oh my, Kat whom I know from Tumblr and twitter is amazing. In a single hashtag that so needs to be a thing has summed up so much of what we live with, and led me down the garden path to lifethreatening/lifeending burnout and the regression that followed. Like Kat, I forced myself for decades to meet and exceed expectations and demands of those around me, moving ever faster and doing more while all the did was take and expect more.

Right before the very end of my life, two thing happened in short order that really triggered the crash. One was that for a couple of years I had warned my husband that things needed to change, that I needed to slow down dramatically while I still could because I had met and exceeded my design specifications by orders of magnitude and was operating so far past redline that one day soon there would be a critical system failure that I, that we, would not survive and my never recover from.

The other horrific thing that happened shortly after that was I had to ask, beg him for a hug.Touch, hugging for me had always been a big thing, and it was, like eye contact and so many other things I was forced to "overcome" a big thing for me. To reach the point where I wanted and needed a hug, from someone I'd convinced myself I loved who loved me, that was one of the hardest things I'd ever done.  To have him hold me like a stranger being put on the spot, being asked to do something he couldn't/wouldn't/didn't want to have to do has left me scared to this day.

I used to have a policy of regularly scheduled crys.  I'd lock myself away in a dark, quiet place, and completely lose it as Earl used to say. He SHAMED me constantly, for so many things, and my need to be alone in the dark crying until I could cry no more was something I couldn't explain to myself, him, or anyone else. I know now what that was, and why it was so important to me that when he threatened divorce for that I said "fine." For those reading who may not know, it's commonly understood amoung womankind that "fine" is shorthand for many things, and we're not always clear what we mean. For one woman's explantion read Ashley's post: http://elitedaily.com/woman/girl-really-means-says-shes-fine/

My old life was literlly death by thousands of cuts. Surviving the impossible and having to cry in the dark and quit until I could cry no more without really being able to explain why, but knowing if I didn't bad, bad, bad things would happen. My husband was abusive, that should be clear, I'll not bore you with the horrors of that hear. Be it enough said he was abusive, and I didn't really know better at the time. Like most battered women, I'd grown up a battered child. Earl was me not knowing any better and still trying to gain my father's love, approval, and an end to the abuse I suffered at his hands.

So when Earl threatened divorce because of me need to hide away, sob and cry uncontrollably and rock until I would either feel spent enough to leave my one safe place and try to get on with my act, or passout for a while and then try to get on with it, I was already stressed and upset enough that fine was a culturally acceptable and understood way of tell hit to bugger off.  What I didn't know then, and didn't learn until after we'd both died, was that my regularly scheduled cries were barely controlled autistic meltdowns and I had to do them often to avoid being laid up for a week aferward. Yes, a week.  In my new life of recovery a meltdow I cannot catch, stop, or control means four days of recovering to the point where I can do more than wander to the loo, have  cuppa, and perhaps have a bit of food. For those of you who don't know what meltdowns are, it's not unlike ... nothing ou probably even have a way to understnad. It's almost like a flu that nearly kills you, or getting hit by a truck, or anything that would leave you bed ridden and incapactitated for days healing. Trust me, if you've never had a meltdown, consider yourself lucky, but also try to generate some compassion/sympathy/understanding.

Anyway it's ore than a decade since the end cme, the person I was, long dead and gone. My husband, long dead, gone, and buried, in the ground. No, I did not kill him. He took care of that himself as he was trying to kill me. Mine wa the divorce from hell and then some. Escalating violence, abuse, stalking, full burn meltdown and hospitalizations, a horror so bad that "I" had to die in order to have a hope at survival and recovery. The divorce never actually was resolved, and he was not required to register as a sex offender for the rest of his life because he's dead and burried. Before his death, I had to go through a kind of witness protection to escape his and his parent's wrath.

So today I became aware of the hastag #LetterToShameZombies and like a lotus, my mind opened up and I so knew it really needto to be a thing. For all of us. A gift of insight and brilliance from Kat to the rest of us.  Ableism is pervasive, insideous, and even deadly. I tweeted back to Kat "Oh my yes! THIS! They push, take, expect more, and give nothing, theyuse you up and throw you away. #LetterToShamezombies" and then came here to write this.

When I lived through and escaped my fathers abuse, violence, hate and escaped with my life I knew nothing about autism. When I fought my way through school and corespondence courses that resulted in a bunch of otherwise  useless letters after my name, I knew nothing about autism. When I moved here to escape my brother's widow and the abuse at her hands, I knew nothing about autism. I though all the times I'd landed in the hospital for seril nervous breakdowns, I knew nothing about the far worse concepts of meltdowns, shutdowns. and burnouts, let alone autistic regression.

What I have always known, and felt to sting of, is the liberal doses of shame heaped on me for never being "enough."  Good enough, fast enough, stong enough, queer enough, and so forth. That stopped when I outlived to two worst of the abusers in my life, and let me start to work on healthy boundaies, and loving, and finding out who I am. So for all the Zombies out there that would eat my brain, you will never have my heart or my soul. Because I am enough and this is my letter to all of you who would seek to shame me. You are hear by served notice that if "my blade finds it's mark you will cease to exit, yet should ou happen to cut me down, I will only grow stronger."  I'm living proof of that.

So I'm thrilled and so loving what Kat had to say that I had to share it here. This so needs to be a thing. Seriously.

Sunday, October 18, 2015

Self acceptance, autism, and aliens...

As I sit here reading "The Martian" I'm just about finished and the climax was so intense I was rocking with excitement. And once I'd equalized enough to pause, I thought of a thread on FB.

I am autistic. Unapologetically, unabashedly, completely open and honest about it. I stim when and where I need to and no longer care what other people think when I stim, or when the only voice they hear is my AAC speaking when I press buttons for prepared statements, or sentences I write one finger at a time and press play.

I don't use autism as an excuse for being different, not like them, I mention it as an explanation when I work on either understanding something, or choosing not to participate in a group activity.

Not because I want anyone to feel sorry for me, or stop what they are doing to find connective language that works. I politely sit out what is going on so the group can keep having fun and I watch and soak up the joy and happiness, participating in a way that best works for all of us.

I'm a person, I feel, have needs, love, laugh, and willingly spend time with other people as best I'm able, when I'm able. I'm an autistic woman yes, but I do my best to make it work as well for me as I can when I can.

I'm not a functioning level. I'm not defined by my ability, or lack there of, to speak with my mouth like neurotypicals. Sometimes I do not do things, do not go places, even cannot. But I focus on what I CAN DO when I can do it, and I am constantly growing. Constantly finding new and better ways to use my time, effort, energy and more. Yes, I watch my spoons, yes I work hard to avoid meltdowns and shutdowns and all the stuff that goes into them. 

I'm constantly learning, and I have autistic pride. Because when I was a child my daily fight was to avoid being institutionalized, and I'm not ashamed to admit that anymore, or all the crap I went through to get here. I'm pretty pleased and blessed by friends and family that love me just as I am, whether I use an AAC to speak or my mouth. They still love me. If I stim in public (I do often) they don't try to silence me, they just ask if I want to keep doing whatever we are doing, take a break, or even stop and do something else.

I belong right here. I'm not an alien, I'm an autistic woman, and I accept myself. Other people do too. I'm loved and love others. This is my life, my world, my experience, my communications, are things different? Sure, but that's okay. I wouldn't have my life any other way, and I can say that after trying so hard, for so long to pass as nuerotypical that I hit life threatening / life ending burnout and autistic regression over a decade ago. I lost a bunch of "functioning" then that I had worked hard to gain. But again it doesn't make me less than, just different. Most of the time I'm lucky, really lucky, if I can "pass" as HF/ASPIE. And yeah, it's kind of something I aspire too, but it's not the end of the world when or if I cannot. I'm me, and always working on being the best me I can at any given moment. Autism and all.